Connecting ESS survivors around the world

Supporting each other.Our site, put together by Endometrial Stromal Sarcoma (ESS) survivors, is intended to help women who are dealing with this diagnosis, as well as their loved ones. We will help you sort through the information that is available about our rare sarcoma, offer support through our Discussion group, our private Facebook group, and will provide stories from survivors.

We hope to learn our lessons from geese, supporting each other through the bad times, as well as the good. You can download Lessons from Geese here

We are not medical experts, so please check with your medical team to verify the accuracy of any information that you receive here.

We are here to help, so don't hesitate to contact one of us for more information.

Newly diagnosed?

We know that learning that you have a rare sarcoma is often terrifying. You need information and guidance in order to ensure that you receive the best treatment. Your first stop should be our discussion group where you will find ongoing discussions about everything from coping with your initial surgery, all the way to dealing with menopause symptoms.

Just click on the link in the main menu to get started.

Facebook Group

You are welcome to join our secret Facebook group for our fellow survivors and their family members. To join the group, send an email to our webmaster requesting to be added to the group. Then send a friend request to crazysuzy. You will then be added to the Facebook group.

Quote of the day

“If we have as much sense as geese, we will stand by each other in difficult times as well as when we are strong.”
Angeles Arrien
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