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Connecting ESS survivors around the world

Supporting each other.Our site, put together by Endometrial Stromal Sarcoma (ESS) survivors, is intended to help women who are dealing with this diagnosis, as well as their loved ones. We will help you sort through the information that is available about our rare sarcoma, offer support through our Discussion group, our private Facebook group, and will provide stories from survivors.

We hope to learn our lessons from geese, supporting each other through the bad times, as well as the good. You can download Lessons from Geese here

We are not medical experts, so please check with your medical team to verify the accuracy of any information that you receive here.

We are here to help, so don't hesitate to contact one of us for more information.

Newly diagnosed?

We know that learning that you have a rare sarcoma is often terrifying. You need information and guidance in order to ensure that you receive the best treatment. Your first stop should be our discussion group on Facebook where you will find ongoing discussions about everything from coping with your initial surgery, all the way to dealing with menopause symptoms. To join the Facebook group, go to this link, log in to Facebook if necessary, then click the Join button. Be sure to answer the necessary questions.

Facebook Group

You are welcome to join our private Facebook group for our fellow survivors and their family members. To join the group, go to https://www.facebook.com/groups/608221736011218 and click the Join button. Answer the questions about your diagnosis and submit.

Quote of the day

“If we have as much sense as geese, we will stand by each other in difficult times as well as when we are strong.”
Angeles Arrien